Author: New Media Works

I'm just a regular person ;) If you want to know more, pls send me a msg -- thanks! :D

There’s always still a list of so much that needs to be done in a variety of contexts, all things I WANT to do but just don’t have enough to do — enough energy, enough brain power, enough emotional bandwidth, enough of ME

Keywords: general

it’s a tiring to be a forever patient, handle all that comes with the diagnosis and the treatment, learn about all of the things that I need to know and understand to make good decisions, advocate for myself and others, be a mom and wife and friend.

https://nohalfmeasures.blog/2021/06/15/im-so-tired

I knew that everyone in the room would not judge me and would listen to every word I said

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As someone who barely opens up to other people, this was a big deal. I look back now with fond memories of that weekend. Yes, there were painful moments but what made them beautiful was that everyone was hurting together. No one was hurting alone. While I would love to go into further detail of that weekend, I am choosing to keep the rest of it offline for safekeeping. I am open to questions about the experience, but will not be discussing my bunkmates because I want to keep their privacy.

https://we-got-this.blog/2021/06/02/brave-af

It’s times like these that you really need that support, as I know this is going to be a hard time to get through alone

Keywords: oxford mba , break , broken bone , cycling , easter , education , foot , masters , mba , oxford , rowing , running , university , work

I actively have to stop myself thinking about what I could or should have been doing each day. Instead I’m resigned to either my bed or sofa all day, which is really very soul-destroying. The positive way of looking at it, is that I could have a super productive few months, which I hope is true, but I’m also realising that I don’t have that much extra time because the mere acts of getting ready, or making food, just take so much time and energy.

https://yorkshireto.com/2021/04/25/i-cant-quite-believe-this-week-has-happened-from-feeling-on-top-of-the-world-to-a-complete-wreck

There are very few stories out there about what life looks like for a disability family after the parents are gone, so I’m offering ours up as a gift

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I care too much about the other siblings who are carrying time-bombs of their own. I care too much about the parents who are doing their best to protect their children. I want to draw a map where no map exists because I know there are people still navigating the wilderness I left behind. I want you to have a better journey than I had.

https://sibstoryca.wordpress.com/2021/03/29/stories